Duchenne A&E Pack

The aim of this site is to enable A&E staff to access information immediately relevant to Duchenne Muscular Dystrophy.

In order to provide the most up to date clinical information to A&E staff, patients and their carers must make sure their records are updated following each and every visit to the clinic.

It is essential that clinicians understand the specific needs of persons with Duchenne when formulating a response to an A&E admission.

Most people with Duchenne never need to go to an A&E, however this content has been produced to assist parents if their child with Duchenne is unwell and needs to attend hospital. Advice including recent lung function and heart checks are extremely useful for doctors.

Anaesthesia and Surgery

Cardiovascular Disease


Gastrointestinal Problems

Use of Opiates

Respiratory Management

Steroid Treatment

The information in this guide was written by leading clinicians around the UK with support from:

  • action duchenne
  • alexs wish
  • duchenne uk
  • duchenne now
  • duchenne research fund
  • harrisons fund
  • joining jack
  • muscular dystrophy uk
  • treat nmd